Elections 2021: ‘Dad and mom should not must battle for kid’s care’

Zach


The mother of a disabled boy has said she believes he is being failed by the social care system.

Zach, 10, from Mansfield, has multiple life-limiting conditions, including learning disabilities, sensory processing disorder and intestinal failure.

He also has a central line – a tube connected to a large vein near his heart – which provides him with vital fluids and medication.

Despite having continuous care needs, Zach faces a wait of up to a year for essential new equipment, according to his mum Tricy.

“His bed isn’t suitable. He’s damaged his central line three times,” she said.

Together For Shorter Lives, a charity which supports seriously ill children and their families, said it has seen an increase in the number of calls from parents who are struggling to access continuing health care, while children’s services in England have been described as being “woefully underfunded” by the Association of Directors of Children’s Services.

Laurence Jones, service director, commissioning and…